Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families.
Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children’s own questions about death, and the impact of life-limiting illness on the whole family – including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral.
This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.
Table of Content
Foreword. Introduction. Introduction to Paediatric Palliative Care. 1. The Historical Background of Paediatric Palliative Care. 2. Working Collaboratively. Responding to Holistic Needs from Diagnosis through to Terminal Care and Bereavement. 3. Assessment of Needs and Models of Care. 4. Managing Children’s Pain. 5. The End of Life Phase of Care. 6. Administrative and Practical Requirements When a Child Dies. 7. The Child’s Funeral. 8. Counselling Support. 9. The Financial Impact of Caring. Meeting Individual Needs. 10. Children’s Developmental Understanding and Emotional Response to Death and Dying. 11. The Impact of Life-limiting Illness on the Family. 12. Continuing Bonds. 13. Working with Siblings of Life-limited Children. 14. Grandparent Support. 15. Religious, Cultural, Secular and Spiritual Aspects of Care. 16. Post Mortem, Organ Donation and Tissue Retention. 17. The Education of the Life-limited Child. 18. Transition from Paediatric Palliative Care to Adult Services. 19. Acknowledging Staff Stress and Providing Support. The Way Forward. 20. Maintaining the Quality of Care. 21. The Role of Research and Development in Children’s Hospices. References. Subject Index. Author Index.
About the author
Brian Warr is Director of Care at Acorns Children’s Hospice, a post he has held for the past 14 years. Before joining Acorns Brian held senior management posts with Barnardos and Social Services. He has been employed in child care posts for 34 years. In 1998, Brian became a Justice of the Peace in both the Family Court and The Youth Work Court.
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