Based on detailed studies of the actual use of genetic testing in context, this book looks at the ethical and political questions raised by the expanding role of genetic information in society. In contrast to the established perspective which focuses on individual freedom, the authors emphasize a pragmatic approach focussed on societal learning.
Table des matières
Preface Notes on Contributors The ‘Unknown’ Practice of Genetic Testing; G.de Vries Constructing Results in Prenatal Diagnosis; Beyond Technological Testing and Moral Decision Making; M.van Zwieten Genetic Diagnostics for Hereditary Breast Cancer – Displacement of Uncertainty and Responsibility; M.Boenink Lifestyle, Genes and Cholesterol: New Struggles about Responsibility and Solidarity; K.Horstman Detecting Familial Hypercholesterolemia: Escaping the Family History?; K.Horstman & C.Smand Genetics and Insurance: New Technologies, New Policies, New Responsibilities; I.van Hoyweghen Work, Health and Genetics: Problems of Regulation in a Changing Society; R.Benschop & G.de Vries Genetic Risks and Justice in the Workplace: The End of the Protection Paradigm?; R.Vos Learning From The Work That Links Laboratory to Society; G.de Vries & K.Horstman Bibliography Index
A propos de l’auteur
RUTH BENSCHOP University of Maastricht, the Netherlands MARIANNE BOENINK University of Twente, the Netherlands KLASIEN HORSTMAN University of Maastricht, the Netherlands INE VAN HOYWEGHEN University of Maastricht, the Netherlands CARIN SMAND University of Maastricht, the Netherlands and the Dutch Transplantation Foundation REIN VOS University of Maastricht, the Netherlands GERARD DE VRIES University of Amsterdam, the Netherlands and Scientific Council for Government Policy, The Hague, the Netherlands MYRA C.B.VAN ZWIETEN Academic Medical Center, Amsterdam, the Netherlands.
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