The first advanced-level genetics counseling skills resource
As genetic medicine and testing continue to expand, so the role
of the genetic counselor is transforming and evolving. Genetic
Counseling Practice: Advanced Concepts and Skills is the first
text to address ways that genetic counselors can deepen their
skills to meet expanding practice demands. This timely resource not
only helps readers further develop their abilities to gather
relevant data and interpret it for patients, it also aids them in
surpassing their usual role by truly understanding patient
situations, incorporating patient values into clinical practice,
providing in-depth support, and facilitating thoroughly informed,
autonomous decisions.
Edited by an expert cross-disciplinary team consisting of a
genetic counseling program director, a licensed psychologist, and a
nurse/bioethicist/family social scientist, this authoritative
reference provides specific and detailed instruction in addressing
psychosocial aspects of genetic counseling practice and
professional development and training issues of genetic
counselors.
* Provides a process view of genetic counselor service
provision; i.e., skills that promote desired genetic counseling
outcomes are emphasized (such as relationship skills, patient
characteristics, client behaviors, and extra-clinical skills)
* Includes experiential activities in every chapter to help
readers apply concepts and skills
* Draws on the experience of widely recognized experts in genetic
counseling theory, practice, and research, who serve as chapter
authors
* Features numerous specific, real-life examples from clinical
practice
Genetic Counseling Practice addresses issues relevant to
practicing genetic counselors as well as students of genetic
counseling programs. In addition, oncology nurses, social workers,
and psychologists working with genetic counseling patients and
families; medical geneticists and physicians training in the field;
and physician assistants will also benefit from this resource.
Daftar Isi
CONTRIBUTORS vii
PREFACE xi
1 INTRODUCTION 1
Bonnie S. Le Roy, Patricia Mc Carthy Veach, and Dianne M.
Bartels
PART I GENETIC COUNSELING DYNAMICS.
2 COMPLICATED SHADOWS: A CRITIQUE OF AUTONOMY IN GENETIC
COUNSELING 13
Robert G. Resta
3 ACTIVELY ENGAGING WITH PATIENTS IN DECISION MAKING 31
Andrea Zanko and Michelle Fox
4 RISK COMMUNICATION: A COMPLEX PROCESS 65
Shannan De Lany Dixon and Yasmine L. Konheim-Kalkstein
5 GRIEVING: AN INEVITABLE JOURNEY 95
Elizabeth Gettig
6 FACING PATIENT ANGER 125
Bonnie Jeanne Baty
7 RESISTANCE AND ADHERENCE: UNDERSTANDING THE PATIENT’S
PERSPECTIVE 155
Jon Weil
8 COUNTERTRANSFERENCE: MAKING THE UNCONSCIOUS CONSCIOUS
175
Jon Weil
PART II CLIENT CULTURAL AND INDIVIDUAL
CHARACTERISTICS.
9 HONORING DIVERSITY: CULTURAL COMPETENCE IN GENETIC COUNSELING
201
Linwood J. Lewis
10 GENETIC COUNSELING STRATEGIES FOR WORKING WITH FAMILIES
235
Deborah L. Eunpu
11 DEVELOPMENTALLY BASED APPROACHES FOR COUNSELING CHILDREN AND
ADOLESCENTS 253
Stephanie Austin
12 GENETIC COUNSELING FOR WOMEN WITH INTELLECTUAL DISABILITIES
281
Brenda Finucane
PART III GENETIC COUNSELOR DEVELOPMENT.
13 GENETIC COUNSELORS: CARING MINDFULLY FOR OURSELVES 307
June A. Peters
14 PROFESSIONAL DEVELOPMENT: REFLECTIVE GENETIC COUNSELING
PRACTICE 353
Kimberly W. Zahm
15 MOBILIZING GENETIC COUNSELOR LEADERSHIP SKILLS 381
Nancy P. Callanan
INDEX 401
Tentang Penulis
Bonnie S Le Roy, MS, Department of Genetics, Cell Biology,
& Development, University of Minnesota, USA
Patricia M Veach, Ph D, Department of Educational
Psychology, University of Minnesota, USA
Diane M Bartels, Ph D, Center for Bioethics, University of
Minnesota, USA