Shannon O’Hara, skating down the ice chasing after the puck, comes face to face with a larger-than-life opposing team player. Never one to back down from anything, barely five feet fall, Shannon tangles with the player and ends up with a penalty. As she sits in the penalty boxonly thinking about getting out in two minutesno one would ever imagine that this beautiful, vibrant, and competitive young spirit will be gone in 54 days. The devastating news that 12-year-old Shannon is diagnosed with an inoperable brain tumor is unfathomable, surreal, and unimaginable. This is the raw and emotional story of the O’Hara’s as they prepare for the fight of their lives, and their ultimate loss.

Written and inspired by a blog that Dan and Jen O’Hara wrote to keep in touch with their family, friends, and supporters near and far, the story follows the yearlong battle from diagnosis to death and exemplifies how to live the ‘new normal’ every day, no matter what it entails. Shannon’s struggle reveals why family, faith, and hope are so important in our daily lives and how the support of a community plays such a vital role through the good times and especially the bad.