With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities.
Drawing together evidence-based research and expert practitioners’ experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity.
This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.
Spis treści
1. Introduction. Julia Botsford, Research Lead, Dementia UK and Senior Admiral Nurse, Barnet, Enfield and Haringey Mental Health NHS Trust. Section One: Exploring the Issues. 2. Dementia and Ethnic Diversity: Numbers and Trends. Omar Khan, Director, Runnymede Trust. 3. Meanings, Identities and Health. Julia Botsford. 4. Dementia and Ethnicity: Implications for Diagnosis and Medical Care. Professor Ajit Shah, University of Central Lancashire and Dr Sofia Zarate Escudero, Central North West NHS Foundation Trust. 5. Accessing Support and Services. Jo Moriarty, Research Fellow, Social Care Workforce Research Unit, King’s College London. Section Two: Engaging and Working with People with Dementia and their Families. 6. Dementia and Care Giving in South Asian Communities in the UK. Dr Karan Jutlla, Senior Lecturer, Association for Dementia Studies, University of Worcester. 7. Assessment and Engagement. Vincent Goodorally, Admiral Nurse. 8. Communication and Working with Interpreters: Cultural Competence in Dementia Research and Practice. Julia Botsford. 9. Working Positively with Culture, Ethnicity and Dementia. Julia Botsford and Karen Harrison Dening, Director of Admiral Nursing, Dementia UK. 10. Dementia, Ethnicity and Care Homes. Dr Alisoun Milne, Professor of Social Gerontology and Social Work, University of Kent and Dr Jan Smith, Research and Development Fellow, Dementia Innovation Hub Canterbury Christ Church University. 11. End of Life, Dementia and Black and Minority Ethnic Groups. Karen Harrison Dening. Section Three: Perspectives of Families Living with Dementia. 12. Telling it like it is: Personal Experiences of Ethnicity and Dementia. Joy Watkins, Development Lead and Shemain Wahab, Project Coordinator, Uniting Carers, Dementia UK. Section Four: The Way Forward. 13. Strategy and Policy. Jill Manthorpe, Professor of Social Work and Director of the Social Care Workforce Research Unit, King’s College London. About the Editors. About the Authors. References. Index.
O autorze
Dr Karen Harrison Dening is Head of Research & Publications at Dementia UK, home of Admiral Nursing. She has years of expertise in palliative and end-of-life care, advance care planning and case management in dementia. Her previous books with Jessica Kingsley Publishers are Evidence-Based Practice in Dementia for Nurses and Nursing Students, and Dementia, Culture and Ethnicity: Issues for All
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