Some people have always had to find ways of living with long term conditions such as diabetes or coeliac disease, but as people live longer, increasing numbers of us now experience long-term poor health. While some conditions that previously limited the length of life are manageable a growing number of people live with long-term conditions. Against this backdrop, Long Term Conditions explores the complex issues surrounding the experience of long-term illness and the enormous pressure this puts on individuals, their families and carers and on health and social care services. The perspectives of each of these groups are voiced within this book, with chapters written by people who use health and social care services, carers, policy-makers and practitioners.
Using a variety of research methods to get to the heart of the matter, the book probes assumptions about the experience of long-term poor health and what constitutes good care. Its aim is to challenge readers to think critically about existing policy and provision and to inspire change based on sound evidence and a drive towards greater multi-professional working.
Long Term Conditions provides academics, practitioners and students with a thorough grounding in the complex issues surrounding the experience and management of long-term illness. It is an ideal text for courses on policy, management and practice in health and social care.
Innehållsförteckning
Introduction – Cathy E. Lloyd and Tom Heller
PART ONE: RECEIVING CARE
Introduction – Cathy Lloyd
Living with Early Dementia – Sir Terry Pratchett
Disability and Illness: The Perspective of People Living with a Long-Term Condition – Margo Milne with Mary Larkin and Cathy E. Lloyd
Experiencing Depression and Diabetes – Katharine Barnard and Cathy E. Lloyd
Experiencing and Managing Medically Unexplained Conditions: The Case of Chronic Pelvic Pain in Women – Elaine Denny
Me and ME: Therapeutic Landscapes in an Unfamiliar World – Sara Mac Kian
PART TWO: WORKING WITH PEOPLE WITH LONG-TERM CONDITIONS
Introduction – Tom Heller
How to Make Health and Social Care Research Radical and Really, Really Useful – Rachel Purtell and Andrew Gibson
Naught for Your Comfort: Quality of Primary Care for People with Long-Term Conditions – Tom Heller
Diabetes and Pregnancy: Service-Users′ Perspectives on Services and on Research – Cathy E. Lloyd and Sarah Earle
Coeliac Disease: Psychosocial Factors in Adults and Children – Ruth A. Howard, G. Urquhart Law and Jane L. Petty
Working with Vulnerable People: Experiences of Disability – Mary Larkin
PART THREE: DELIVERING HEALTH AND SOCIAL CARE FOR PEOPLE WITH LONG-TERM CONDITIONS
Introduction – Alistair Hewison
Delivering Health and Social Care for People with Long-Term Conditions: The Policy Context – Alistair Hewison
International Experiences of Integrating Health and Social Care for People Living with HIV – Erica Richardson
Worth a Risk? Risk Taking and People with Long-Term Conditions – Tom Heller
What About the Carers? – Mary Larkin
Ethics and Long-Term Conditions: A Reflective Approach – Stephen Pattison
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