Jane Alison Sherwin’s honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA).
After years of misdiagnosis, Jane’s daughter, Mollie, was diagnosed with PDA at the age of seven, and we follow her experiences pre and post diagnosis to age 10 as she attends school, interacts with the outside world and approaches adolescence. Throughout, Jane provides commentary on her daughter’s behaviour and the impact it has on her family, explaining the ’why’ of PDA traits, including the need for control, meltdowns, obsessive behaviour and sensory issues. She reveals the strategies that have worked for Mollie and provides essential advice and information on obtaining a diagnosis and raising awareness of PDA. The book also includes an interview with Mollie.
Full of advice and support, and with a focus on understanding the child and how he or she sees the world, this book will be of immeasurable value to the parents and families of children with PDA as well as the professionals working with them, particularly teachers and teaching assistants, SEN co-ordinators, psychologists, outreach workers and social workers.
Innehållsförteckning
Introduction and Foreword by Phil Christie. I. The Early Years. 1. The Key Diagnostic Features of PDA. 2. The Early Warning Signs. 3. Nursery School Begins and Boom! II. The School Years. 4. Things Go from Bad to Worse. 5. A New School and A New Start. 6. An End to Formal Education. III. Understanding Mollie’s PDA Behaviours. 7. Difficulties with Social Understanding and Verbal Communication. 8. Routine, Predictability, Fantasy and Obsessions. 9. Summing Up the Difficulties and Empathising with Mollie. IV. Breaking the PDA Cycle. 10. The Cycle of Demand, Control, Avoidance and Meltdown. 11. Strategies that Help Mollie Feel in Control. 12. Strategies for Other Areas of Difficulty – Sensory Issues, Sleep, Transitions, Obsessions, Sexualised Behaviour and More. 13. Getting Schooling Right. 14. PDA Plus. V. Learning to Interact in the Neurotypical World. 15. Mollie Dips Her Toes in the Outside World. 16. Strategies for Teaching the Social Laws and Customs Outside of the Family. VI. Entering the Adolescent Years and Looking to Adulthood. 17. Periods and Puberty. 18. Children with PDA Grow into Adults with PDA. VII. How PDA Has Affected Our Family. 19. Family Dynamics. 20. How Living with PDA Affected My Own Mental Health. 21. Supporting a Family Living with PDA. VIII. Diagnosis. 22. Why Recognition and Diagnosis is So Important. 23. Navigating the Bumpy and Winding Road to Diagnosis. IX. Final Thoughts. 24. The Funny and Endearing Side of PDA. 25. An Interview with Mollie. 26. Our Current Situation and My Hopes for the Future. Appendices. I. A Complete Profile of Mollie’s Behaviours and Traits. II. Frequently Asked Questions. III. Useful Resources. References.
Om författaren
Ruth Fidler is Assistant Head Teacher at Sutherland House School run by the autism charity NORSACA. She works throughout the school (aged 3-19) developing whole school approaches to working interactively with children across the autism spectrum, with a particular focus on social and emotional well being.
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