From DNA sequences stored on computer databases to archived forensic samples and biomedical records, bioinformation comes in many forms. Its unique provenance – the fact that it is ‘mined’ from the very fabric of the human body – makes it a mercurial resource; one that no one seemingly owns, but in which many have deeply vested interests.
Who has the right to exploit and benefit from bioinformation? The individual or community from whom it was derived? The scientists and technicians who make its extraction both possible and meaningful or the commercial and political interests which fund this work? Who is excluded or even at risk from its commercialisation? And what threats and opportunities might the generation of ‘Big Bioinformational Data’ raise?
In this groundbreaking book, authors Bronwyn Parry and Beth Greenhough explore the complex economic, social and political questions arising from the creation and use of bioinformation. Drawing on a range of highly topical cases, including the commercialization of human sequence data; the forensic use of retained bioinformation; biobanking and genealogical research, they show how demand for this resource has grown significantly driving a burgeoning but often highly controversial global economy in bioinformation. But, they argue, change is afoot as new models emerge that challenge the ethos of privatisation by creating instead a dynamic open source ‘bioinformational commons’ available for all future generations.
Who has the right to exploit and benefit from bioinformation? The individual or community from whom it was derived? The scientists and technicians who make its extraction both possible and meaningful or the commercial and political interests which fund this work? Who is excluded or even at risk from its commercialisation? And what threats and opportunities might the generation of ‘Big Bioinformational Data’ raise?
In this groundbreaking book, authors Bronwyn Parry and Beth Greenhough explore the complex economic, social and political questions arising from the creation and use of bioinformation. Drawing on a range of highly topical cases, including the commercialization of human sequence data; the forensic use of retained bioinformation; biobanking and genealogical research, they show how demand for this resource has grown significantly driving a burgeoning but often highly controversial global economy in bioinformation. But, they argue, change is afoot as new models emerge that challenge the ethos of privatisation by creating instead a dynamic open source ‘bioinformational commons’ available for all future generations.
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ContentsAcknowledgements
List of Abbreviations
1 Genesis: What is Bioinformation?
2 Provenance: Where does bioinformation come from?
3 Property: Who owns Bioinformation?
4 Markets: Who consumes Bioinformation?
5 The Big Data Revolution
6 Bioinfomatic Futures: The datafication of everything?
Selected readings
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Bronwyn Parry is Professor in the Department of Global Health and Social Medicine at King’s College, London.Beth Greenhough is Associate Professor in Human Geography at the School of Geography and the Environment, University of Oxford.
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