The Thing About Jed is the story of extremes, from a diagnosis of a rare disease, to the highs of meeting one of Hollywood’s favourite characters, and then to the crashing lows of losing a friend in the most tragic circumstances. The story tells of how one family make daily choices, all taught to them by their son, who suffers from a rare brain disease, Moyamoya.
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Nicola Baker established Moyamoya Australia, after her 19 year old son is afflicted with Moyamoya Disease. Jed had his first stroke from this disease at just 11 months old, which affects one in 100, 000 and there is very little known about it. Nicola established the Foundation to provide information, support, and networking to those families who are dealing with this disease. Moyamoya Australia offers funding to families to help with some of the costs associated with having a chronically ill family member. Moyamoya Australia have also gifted substantially to Macquarie University Neurosciences to assist in training and research of this disease. This is Nicola’s first book and she is hoping that her story will give courage and strength to anyone who is going through a difficult time in their lives, either to illness or tragedy.
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