This unique book provides a rare look at social work and palliative care from the perspective of service users. It is the first to investigate specialist palliative care social work from this viewpoint.
Drawing on new original research, the authors examine service users’ experiences of social work and palliative care, tracking their journeys through it, exploring the care they receive and the effects of culture and difference through their first hand comments and ideas. The writers link service users’ critiques with broader debates and developments in social work and palliative care and consider the implications of the book’s findings for the formation of policy and practice and for future professional education and training.
A groundbreaking text, Palliative Care, Social Work and Service Users is of particular value to social work professionals, palliative care workers, educators, researchers and policy makers.
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Foreword by Dorothy Rowe. Acknowledgements. Introduction. Part One: The Background to Palliative Care Social Work. 1. Palliative Care: A new perspective. Part Two: What Service Users Say. 2. Becoming involved with palliative care. 3. Starting the palliative care social work journey. 4. What does the social worker do? 5. What service users value most. 6. Working with difference. 7. Exploring outcomes: evaluating specialist palliative care social work. Part Three: Developing the Discussion. 8. Accessing specialist palliative care social work: a broader image problem? 9. The problem of referral. 10. The nature, strengths and weaknesses of practice. 11. Theory and practice. 12. Specialist palliative care social work: a service in the shadows? 13. Issues for the future. Appendix 1: How we carried out the research. Appendix 2: The interview schedule. References. Subject index. Author index.
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Lesley Adshead is a research associate at Birkbeck, University of London. She was formerly a senior social worker at St John’s Palliative Care Centre and taught Specialist Palliative Care Social Work at Middlesex University.