Despite the growth of interest in dementia and dementia care over the past two decades, services and interventions for younger people with dementia and their carers remain, on the whole, fragmented and poorly developed. The focus of social, psychological and biomedical research has been almost exclusively on older people and their carers.
The first book to address the subject in its own right, Younger People with Dementia addresses good practice and stimulates an agenda for change. The contributors explore the implications for younger people with dementia and their families at personal, planning and service-development levels. Arguing that information from the wide range of existing practice and clinical knowledge can be shared and built upon, the contributors call for a collaborative, interprofessional and multi-disciplinary approach to all stages of the provision of services.
สารบัญ
Foreword by Professor Mary Marshall, Dementia Services Development Centre. Introduction, Sylvia Cox and John Keady. PART ONE: SETTING THE SCENE. 1. Assessment and Service Responses for Younger People with Dementia, Jane Mc Lennan, Royal Victoria Hospital Edinburgh and the University of Stirling. 2. Epidemiological Issues and Younger People with Dementia, Kirstie Woodburn, Royal Edinburgh Hospital. 3. Needs Assessment: Individual and Strategic Care Planning, Gregor Mc Walter and Jim Chalmers, Information and Statistics Division, NHS Scotland. 4. Opportunities and Threats: Multi-Agency Perspectives and Person-Centred Planning, Sylvia Cox. PART TWO: SPECIFIC CONSIDERATIONS. 5. HIV and Related Brain Impairment, Steve Jamieson, Bethlem and Maudsley NHS Trust, London. 6. Huntington’s Disease, Roseanne Cetnarskyj and Mary Porteous, West General Hospital, Edinburgh. 7. Learning Disability and Dementia, Sally-Ann Cooper, St Mary’s Hospital Rockingham Forest NHS Trust. 8. Alcohol-Related Brain Impairment: An Approach to the Problem in Victoria, Australia, Simon Crowe, La Trobe University, Melbourne. PART THREE: DEVELOPING AN INDIVIDUAL UNDERSTANDING. 9. Dark Head Amongst the Grey: Experiencing the Worlds of Younger People with Dementia, John Killick, Westminster Health Care and the University of Stirling. 10. Negotiating Care-Giving and Employment, Dianne Seddon, University of Wales, Bangor. 11. Young Carers: Individual Circumstances and Practice Consideration in Dementia Caregiving, Jane Gilliard, Dementia Care, Bristol. 12. Family Caregiving and Younger People with Dementia: Dynamics, Experiences and Service Expectations, John Keady, University of Wales at Bangor and Mike Nolan, University of Sheffield. 13.Designing for Younger People with Dementia: The Needs of Younger People with Dementia, Gretta Peachment, Homes of Peace, Western Australia. PART FOUR: PRACTICE DEVELOPMENTS. 14. Younger People with Dementia: Psychosocial Interventions for Individuals and their Families, Bob Woods, University of Wales, Bangor. 15. Support Groups for People in the Early Stages of Alzheimer’s Disease, Robyn Yale, San Francisco. 16. Training and Younger People with Dementia: A Shared Learning Perspective, Alan Chapman, Dementia Services Development Centre. 17. Changing the Mindset: Developing an Agenda for Change, Sylvia Cox and John Keady. Index.
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