When their children were young, several parents interviewed in this book were told “you can’t expect much from your child.” As they got older, the kids themselves often heard the same thing: that as children with disabilities, academic success would be elusive, if not impossible, for them.
How Did You Get Here? clearly refutes these common, destructive assumptions. It chronicles the educational experiences—from early childhood through college—of sixteen students with disabilities and their paths to personal and academic success at Harvard University. The book explores common themes in their lives—including educational strategies, technologies, and undaunted intellectual ambitions—as well as the crucial roles played by parents, teachers, and other professionals. Above all, it provides a clear and candid account—in the voices of the students themselves—of what it takes to grapple effectively with the many challenges facing young people with disabilities.
A compelling and practical book,
How Did You Get Here?offers clear accounts not only of the challenges and biases facing young disabled students, but also of the opportunities they found, and created, on the way to academic and personal success.
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CONTENTS
Foreword ix
Introduction 1
CHAPTER 1
“My Mother” 15
CHAPTER 2
“I Had Teachers Who Believed in Me” 49
CHAPTER 3
“I Was Always Asking My Teachers for More” 71
CHAPTER 4
“I Found Things to Do Outside the Classroom” 91
CHAPTER 5
“I Was Always Forced to Find a Way” 103
CHAPTER 6
“I Could Not Have Gotten Here Without Audio Text” 133
CHAPTER 7
“My Disability Shapes Who I Am” 155
CHAPTER 8
“I Thought I Knew Something About Disability” 179
CONCLUSION
“How Can More of You Get Here?” 203
Wendy S. Harbour
Notes 227
Acknowledgments 235
About the Authors 237
Index 239
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Thomas Hehir, Ed D, is the Silvana and Christopher Pascucci Professor of Practice in Learning Differences at the Harvard Graduate School of Education. As director of the U.S. Department of Education’s Office of Special Education Programs from 1993 to 1999, Hehir was responsible for federal leadership in implementing the Individuals with Disabilities Education Act (IDEA) and played a leading role in developing the Clinton administration’s proposal for the 1997 reauthorization of IDEA. In 1990, Hehir was associate superintendent for the Chicago Public Schools, where he implemented major changes in the special education service delivery system, enabling Chicago to reach significantly higher levels of compliance with IDEA and resulting in the eventual removal of oversight by the U.S. Department of Education’s Office for Civil Rights. Hehir served in a variety of positions in the Boston Public Schools from 1978 to 1987, including that of director of special education from 1983 to 1987. An advocate for children with disabilities in the education system, he has written extensively on special education. His previous books include
Effective Inclusive Schools: Designing Successful Schoolwide Programs (Jossey-Bass),
New Directions in Special Education: Eliminating Ableism in Policy and Practice (Harvard Education Press), and
Special Education at the Century’s End: Evolution of Theory and Practice Since 1970 (Harvard Education Press).
Laura A. Schifter, Ed D, is an adjunct lecturer at the Harvard Graduate School of Education and a research consultant working with states and advocacy organizations to analyze data on the identification, placement, and performance of students with disabilities. Schifter has been published in the journal
Exceptional Children and served as a coeditor for
A Policy Reader in Universal Design for Learning (Harvard Education Press). She recently graduated with a doctorate from the Harvard Graduate School of Education, where she studied issues in special education, specifically patterns and policies related to high school graduation of students with disabilities. Schifter previously worked as a Senior Education and Disability Advisor for George Miller (D-CA) on the Committee on Education and Labor, and she has worked for the White House Domestic Policy Council and the Senate Health, Education, Labor and Pensions Committee. She also taught elementary school in San Francisco. Schifter earned an Ed M in Mind, Brain, and Education from the Harvard Graduate School of Education and a BA in American Studies from Amherst College.
Wendy S. Harbour is the Lawrence B. Taishoff Professor of Inclusive Education at Syracuse University, where she teaches courses in disability studies, inclusive K–12 education, and disability in higher education. Her areas of expertise are disability studies in education, universal design for learning, and postsecondary disability services. She recently contributed to
Righting Education Wrongs: Disability Studies in Law and Education (Syracuse University Press) and coedited
Disability Services and Campus Dynamics: New Directions for Higher Education (Jossey- Bass). She has served on the editorial boards of the
Harvard Educational Review and the
Journal on Postsecondary Education and Disability, and has been an invited reviewer for
Disability Studies Quarterly and
Inclusion. Harbour is the executive director of the Taishoff Center for Inclusive Higher Education, a research center that also runs programming for Syracuse University students with intellectual and developmental disabilities. She completed her doctorate in education from Harvard University, where she is currently an adjunct lecturer in education. Her master’s degrees in education are from Harvard University and the University of Minnesota.