Sixty percent of Americans live with at least one chronic health condition, and over a lifetime, many people will face multiple surgeries or life-changing diagnoses. A scary diagnosis can be overwhelming, launching patients and their loved ones into a world of fear, uncertainty, and complexity. Scary Diagnosis is a uniquely compassionate and empowering book that helps patients, families, and caregivers navigate the emotional and practical challenges that follow a serious medical diagnosis.
Author Edward Rogoff draws on his own experience with chronic illness and shares compelling stories from others who have faced similar journeys. Through these narratives, he reveals how individuals can move from fear to strength, advocate for themselves, and navigate the healthcare system, while maintaining their sense of control and dignity.
Scary Diagnosis is filled with real-life examples and valuable perspectives to help readers approach the challenges ahead with resilience and determination.
Mục lục
Foreword
Acknowledgments
Introduction
Chapter 1: The First Shock, Then Waiting for Answers
When you receive a scary diagnosis, you need to know how to receive it,
hear it, process it, and rely on others to provide prospective.
Chapter 2: Life or Death
Everyone eventually dies, and some diagnoses are death sentences. But for
almost every diagnosis there is a reason for more optimism than pessimism.
Chapter 3: Vulnerability Squared
Being sick makes you feel vulnerable, fearful, and powerless.
Chapter 4: Sick Children
As vulnerable as you are as an adult, children are far more defenseless.
Chapter 5: Building Your Team
When you receive a scary diagnoses, you naturally tend to become depressed
and isolate yourself from the world.
Chapter 6: You Must Never Lose Your Dignity
At its worst, medical treatment can feel like torture, creating unimaginable
pain that can reduce you to feeling like a supplicant begging for
relief.
Chapter 7: Distrust and Suspicion
Skepticism is good; paranoia is bad. But you are likely somewhere on this
continuum.
Chapter 8: Selecting and Managing Your Doctor
How you can find and select the right doctor.
Chapter 9: Faith, Hope, and the Three Stooges
You need to focus on your attitude and take concrete steps to keep your
mood positive.
Chapter 10: To Share or Not to Share
It may be painful to share, but it can also bring you relief.
Chapter 11: Managing the Hospital Experience
Which hospital you should select to receive the best care?
Chapter 12: Coping with Big, Bad Bureaucracies
How the bureaucracies of insurance companies, hospitals, medical practices,
and government programs can crush your spirit and damage your
chances of successful treatment.
Chapter 13: Confront Your Disease by Being More Than Just a Patient
Being engaged in your work, family, and interests is what makes you who
you are and you shouldn’t lose that to your scary diagnosis.
Chapter 14: With Gratitude, Optimism Is Sustainable
You must strive to find gratitude and acknowledge the strength you found
when coping with your scary diagnosis.
Suggested Reading
Index
Giới thiệu về tác giả
Edward G. Rogoff, Ph.D., is an accomplished educational leader who has taught at Baruch College, Long Island University and New York University. Diagnosed with hemophilia as a child he was cured of it as an adult following a liver transplant. Rogoff has served on the Board of the Hemophilia Association of New York since 1980, and for seven years he was also on the Board of Live On NY, the major organ donor organization for the New York City metropolitan area. Professor Rogoff remains a major advocate for continued research and better treatments for all patients who receive a scary diagnosis.