Enjoy this TRUE STORY from the life of Michael Reading –a toddler born with Neonatal Marfans Syndrome.
Join Michael as he discovers the art of rhyming. From ‘bonk and tonk’ to ‘haha and voila’ Michael’s original compositions will leave you feeling loved and inspired.
Michael was born with a rare life-threatening genetic condition called Neonatal Marfans (a separate entity from traditional marfans) which weakens all connective tissue in his body, most notably the heart, lungs, eyes, blood vessels, bones and joints.
At thirty months he’d already had three open-heart surgeries, lens removal surgery, hernia surgery, and has a team of 21 specialists. Newly discovered heart-valve failure indicates the need for a fourth open-heart surgery.
Even with all his physical struggles, Michael lives a life full of laughter and miracles.
关于作者
Described as ‘the legal communications expert, ‘ Emily Hardman has helped define this emerging legal practice. With 15 years of legal experience including: Special Assistant to the 75th US Attorney General, research fellow at Oxford University, the Utah Supreme Court, the Queen’s High Court in London, a District Attorney’s office, an international firm in London, Senate Judiciary Committee, and most recently as legal communications director at a civil rights law firm, Emily has a unique understanding of winning in the court of law and the court of public opinion. Her work has appeared on CNN, MSNBC, National Law Journal, Washington Post, USA Today, NYT, Associated Press, Huffington Post, and the Daily Show. Emily handled public relations for four (victorious) landmark U.S. Supreme Court cases, and over 40 state and federal cases.Today she is the dedicated mom of Michael Reading telling his story to friends, family and all those who’s lives Michael has touched.
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