Education about multiple sclerosis has traditionally been medically oriented and related to disease and dysfunction. In contrast, this brand-new second edition of the Guide continues to focus on staying well in the presence of MS, a disease that – while incurable – can be managed. The book covers a broad spectrum of topics related to MS and its effects, focusing especially on the needs of those who have been living with the disease for some time. Practical tips on self-care are designed to promote maximum independence, well-being, and productivity. The theme of the book – wellness – can be described by the acronym: Weighing options; Eating well; Living to your fullest; Learning new skills; Needing others; Evaluating situations realistically; Surviving stress; and Staying responsible.
Contributors to the book are professionals who have a specialty or a special interest in MS. Their suggestions, advice, and strategies come from years of experience in the field. It is their hope that readers will come away with fresh ideas on how to cope with the ever-changing challenges of MS.
Mục lục
An Overview of Multiple Sclerosis. Managing the Disease Process and Its Symptoms
The Promise of Research
Disease Management
Fatigue
Pain Management
Maintaining Joint Flexibility and Mobility
Bladder and Bowel Management
Skin Care
Addressing Cognitive Problems
Adjusting to Sexual Changes
What Are Complementary and Alternative Treatments?
Health, Lifestyle, and Emotional Issues. General Health Issues
Exercise Options and Wellness Programs
Cardiopulmonary Issues
The Role of Nutrition in Multiple Sclerosis
Coping and Stress Management
In the Community
Work, Family, and Community Participation
Driving and Other Transportation Issues
Fitness and Recreation
Life Planning
Accessible and Safe Home Design
Managing Financial Resources
Health Insurance Options
Community Living Options
Obtaining Personal Assistance
Appendices
Resources
Glossary
Giới thiệu về tác giả
Nancy Joyce Holland, Ed D, RN, MSCN, is retired from her role as vice president of Clinical Programs at the National MS Society in New York, where she served in various capacities since 1988, including as national director and later vice president of Chapter and Community Services and vice president of Client and Community Services.
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