2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care!
‚This book…provides important information on best practices and appropriate ways to care for a person with Alzheimer’s and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt.‘
-Michael ReaganSon of former President Ronald Reagan
President, Reagan Legacy Foundation
This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia.
The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff.
This book helps caregivers:- Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient’s family
- Anticipate and meet the patient’s basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain
- Ensure that the patient’s surroundings are safe, comfortable, and homelike
- Address health care decisions that will support the patient’s right to self-determination until the end of life
Inhaltsverzeichnis
Acknowledgments xvii
Section I: Introduction to Professional Management of Advanced Dementia
1. Determining and Defining Advanced Dementia
2. The Continuum of Care
3. Caregiving
Section II: Protecting Dignity for the Patient with Dementia: Establishing an Environment and Caregiving Standards
4. Personhood
5. Creating the Optimal Milieu for Care
6. Managing Behavior Problems Associated with Advanced Dementia
7. Assessing and Addressing Pain
8. Ensuring the Appropriate Use of Medications in Advanced Dementia
Section III: Managing Activities of Daily Living
9. Eating and Nutrition
10. Dressing and Grooming
11. Bowel and Bladder Management
12. Ambulation and Mobility
13. Bathing
Section IV: Providing for Other Health Care Needs
14. Activities Programming
15. Cultural Diversity
16. Healthcare Decisions for Advanced Dementia
17. The Continuum of Grief
18. Establishing Healthcare-Related Legal Options for the Vulnerable Patient
Glossary
Appendix A. Professional and Caregiver Resources for Advanced Dementia
Appendix B. Cultural Resources on the Web
Appendix C. Federal Guidelines for Providing Culturally Sensitive Care
Appendix D. Cultural Heritage Assessment Form
Index
Über den Autor
Marwan N. Sabbagh MD is the director of the Cleo Roberts Center for Clinical Research at Banner-Sun Health Research Institute. He is a geriatric neurologist and dementia specialist and one of the leading experts in Alzheimer’s disease research nationally.
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